If you’re wondering, “Can twins with cystic fibrosis be near each other?” then read on. These twins have lived with this life-threatening disease and share many of the same symptoms as their siblings. Despite their shared genetic makeup, their medical and social development is vastly different. This leads to sibling rivalry and twins struggling with their natural desire to be independent.
People with cystic fibrosis are also more likely to transmit germs and bacteria from one person to the next. This is known as cross-infection. These microbes can cause lung disease and are more difficult to treat. Fortunately, there are ways to keep twins with cystic fibrosis near each other without risking the twins’ health.
Researchers recruited 530 pairs of CF patients from 158 CF clinics in 14 European countries. The CF patients provided information such as date of birth, gender, and zygosity status. Researchers calculated the severity of the disease based on the measured heights and weights. They also noted the differences in response to treatment between the twins with the same cystic fibrosis gene mutation. They also noted that monozygotic twins were less likely to experience severe symptoms than dizygotic.
The risk of having a child born with CF is 15x higher than for non-carriers. The risk becomes even more significant when the disease is rare. For example, in people who have a color-blindness gene, one in every 20,000-50,000 people will be carriers. Similar to the above, the risk of contracting the disease from both parents increases dramatically. This is a very low risk.
If you have been affected by cystic fibrosis, you’ll know what it means to have identical twins. Although these twins share the same genes, they have varying degrees of cystic fibrosis. One twin is more likely to die from a simple cold or the flu if they have the disease. It is important to find out if your twin has CF.
In the meantime, you can watch a documentary about Isabel and Ana Stenzel, who have been battling this disease together for years. The Power of Two premieres on KCETLink on May 22 at 8 p.m. PDT and nationally on Link TV, channel 9410. Additional broadcasts are planned for May 27th at 8 p.m. PDT.
The CF treatment regimen requires strict schedules. The treatment options for CF parents should be discussed with a medical team. Prenatal checkups are important for parents and babies. Women should consult with their healthcare provider about CF, the treatment plan, and any other concerns. In addition to visiting your physician, you should consult with other healthcare providers. You can make the best decisions for your baby’s health by consulting with other healthcare providers.
Two-parent twins with cystic Fibrosis had a baby at 29 weeks gestation. Their pregnancy was complicated at 26 weeks by premature rupture of membranes and an abnormal Triple Screen. This resulted in fetal intrauterine Growth Retardation. At the time of delivery, both babies were placed on the mothers’ right and left breasts, and temperatures were manually recorded every 15 seconds for the first 7 minutes, and then every 30 seconds after that.